Grant
How to Apply for Our Rare Disease Research Grants
At the Children’s Rare Disease Organization, we’re on a mission to transform the future of children battling rare diseases. We understand the critical need for innovative research into these conditions’ causes, cures, and treatments. We’re committed to empowering organizations and institutions like yours through our rare disease research grants.
Your Opportunity to Make a Difference
We invite organizations dedicated to rare pediatric disease research to apply for funding. Your journey starts with a detailed proposal outlining your study’s objectives, methodology, and anticipated impact. Our Board will meticulously review your proposal, focusing on the potential to address unmet medical needs and the seriousness of the condition under investigation.
Grant Application Process
Submit Your Proposal
Fill out the application form and send it with your comprehensive research proposal and budget to info@childrenraredisease.org.
Await Review
Our Board will evaluate your proposal based on its merit and alignment with our mission to cure rare childhood diseases.
Embark on Research
Once awarded, you’ll embark on your research journey, adhering to the agreed proposal and updating us on your progress and fund utilization.
Our Commitment
Upon receiving a grant, we expect a deep commitment to your regular research progress reports. We hold ourselves and our grant recipients to the highest standards of accountability and transparency. The Board is dedicated to meticulously maintaining a detailed account of the distributions made to each organization annually. At the end of each year, the Board will thoroughly review these distributions to ensure adherence to our mutual goals and proper fund utilization.
Misuse of funds is not taken lightly, and we require restitution in case of any financial discrepancies, underscoring our commitment to ethical and responsible grant management.
Transparency and Ethics
We maintain a detailed account of grants awarded and ensure that every dollar is used to push the boundaries of rare disease research. Our partnership with recipient organizations is bound by a shared mission rather than a formal relationship, highlighting our collective dedication to making a tangible difference.
Begin the Application Process
Your pioneering research could lead to the next breakthrough in rare disease treatment. When you’re ready to take the first step toward potential funding and partnership:
Download the application form and submit your proposal to us.
Send us your questions about the application process, and a representative from the Children’s Rare Disease Organization will be in touch to guide you through the next steps. Together, we can champion the cause of children affected by rare diseases, driving significant advancements in their care and treatment.